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| | Harry Potter News Fresh off the press! Stay informed on the latest Harry Potter news, updates, and whispers here. All News Rules and FAQs apply. | |
02-28-2007, 06:37 PM
| | |  J.K. Rowling fights for MS patients
J.K. Rowling, patron of the MS Society Scotland, spoke out yesterday against the Scottish Medicines Consortium’s decision to ban use of the drug Tysabri to treat multiple sclerosis (MS), due to its high cost. Quote:
I know from personal experience that MS can have a devastating effect on everyone who comes into contact with it. My mother suffered terribly with MS and it was so frustrating that there was little or nothing doctors could do to help her.
If a drug can help tackle MS - particularly the very aggressive type of relapsing MS we are talking about - it should not be ruled out because of cost alone.
Once again, decisions about treatment are being made by accountants rather than clinicians, and I hope MSPs will speak up on behalf of the thousands of families affected by MS across Scotland.
Tysabri, which costs £15,000 per year, is prescribed as a last resort for patients who have not had success with any other form of treatment.
According to Mark Hazelwood, director of the MS Society Scotland: Quote:
People affected by MS in Scotland should have the same access to treatments as their counterparts in Ireland, Germany, the U.S. and elsewhere.
More that 10,000 people are now taking this drug worldwide, but we are barely out of the starting blocks.
Ironically, Scotland has the highest rate of MS worldwide, with one in 500 people afflicted with the disease. Nearly 1,000 of them could potentially benefit from Tysabri.  | |
02-28-2007, 11:54 PM
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#26 (permalink)
| | Billywig
Join Date: Sep 2004 Location: In a Sanrio store spending big bucks!
Posts: 3,877
Hogwarts RPG Name:
Cocoa
Third |
Wow! go JK!
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03-01-2007, 12:04 AM
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#27 (permalink)
| | Billywig
Join Date: Feb 2006 Location: ♥ waiting for
Posts: 3,641
Hogwarts RPG Name:
Cassie Alexandersson
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That's awesome, go her!
Sorry about her mother though  . | |
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03-01-2007, 12:43 AM
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#28 (permalink)
| | Jarvey
Join Date: Jun 2006 Location: on the moon over Australia
Posts: 533
Hogwarts RPG Name:
Nimue
First |
good for you Jo, I dont understand why the government makes things so difficult for sufferers we had the same thing in Australia with a breast cancer drug
__________________ 
Thanx to Whende at Magic Numbers for the siggie SSRJFC | |
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03-01-2007, 01:04 AM
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#29 (permalink)
| | Puffskein
Join Date: Aug 2005 Location: Pompano Beach, FL
Posts: 1,306
Seventh |
GO JO!!! We're right with you. | |
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03-01-2007, 01:05 AM
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#30 (permalink)
|  !!!!Awesome!!!!Jobberknoll
Join Date: May 2004 Location: in Howarts offcourse
Posts: 4,130
Hogwarts RPG Name:
Mari Elizabeth Allen
Fourth Year |
It's good that she speeks up especially because she has experiences with the disease
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03-01-2007, 01:15 AM
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#31 (permalink)
| | Dugbog
Join Date: Jul 2006 Location: Central Coast Australia
Posts: 100
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As Nimue said GO JO
The government refuses responsibility for its failures here also instead of paying attention to MS societies and cancer councils our government while maintaining that things like Heroin are illeagal they spend a fourtune on heroin injecting rooms rather than what they should be spending funds on.
Any campingning we can do for these worthy causes is worth it.
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03-01-2007, 06:26 AM
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#32 (permalink)
| | Swedish Short-Snout
Join Date: Dec 2005 Location: Wangdoodleland.
Posts: 31,294
| Russian Dancing Snake-Twin | Jam Pony Rider | Has Snuffed It!
yay for speaking out!!! that's ridiculous that they banned it for price. Quote:
Originally Posted by my Dad If money can fix it, it's not a problem. | |
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03-01-2007, 07:29 AM
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#33 (permalink)
| | Puffskein
Join Date: Jan 2006 Location: in my room lock up w
Posts: 1,088
Hogwarts RPG Name:
Roezaria Kate Crosweld
Sixth Year |
Go JK! you rock! \_/
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03-01-2007, 10:16 AM
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#34 (permalink)
| | Fwooper
Join Date: Sep 2006 Location: somewhere
Posts: 21,658
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 Go Joanne!! 
__________________  Cullen. Edward Cullen. | |
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03-01-2007, 10:38 AM
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#35 (permalink)
|  Tonks Is My WomanBillywig
Join Date: Jul 2006 Location: In the middle of now
Posts: 3,166
Hogwarts RPG Name:
Sakura Maharene Salome Tamaka Lada
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You Go J.K.!!
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03-01-2007, 02:52 PM
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#36 (permalink)
| | Mackled Malaclaw
Join Date: Sep 2005 Location: (CDT) GMT-5
Posts: 11,371
Hogwarts RPG Name:
Asher Stinson
Second Year |
You go Jo! One of my best friends has MS and it sucks.
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03-01-2007, 03:29 PM
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#37 (permalink)
| | Pygmy Puff
Join Date: Feb 2006 Location: In a pineapple. <3
Posts: 18,309
Hogwarts RPG Name:
Emerson Gray.
Fourth Year | G1GGL3R! *giggles* My GarBear
Go Jo! Fight for what's right! | |
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03-01-2007, 04:05 PM
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#38 (permalink)
|  Forum Manager
Potterdom Mod
Honeydukes Mod
  Occamy
Join Date: Nov 2006 Location: Oz
Posts: 63,666
Hogwarts RPG Name:
Ariel Scamander
Gryffindor Third Year
Hogwarts RPG Name:
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| Bathes in Maple Syrup | Dancing Lobster | Mrs. Charlie Weasley | Seneca's Beard | That's So Fetch
Go Jo! We're right beside ya.
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03-01-2007, 04:17 PM
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#39 (permalink)
| Russia's Glam Girl Firecrab
Join Date: Jan 2006 Location: Ozzy Land
Posts: 986
Hogwarts RPG Name:
Gracie Clearwater
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yea go Jo for speaking up for others !!!!!!!!!!
__________________
*sucker for romance*
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03-01-2007, 09:49 PM
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#40 (permalink)
| | Plimpy
Join Date: Mar 2005 Location: In the TARDIS
Posts: 15,341
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I agree with Jo, life is much more important than money!! | |
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03-02-2007, 11:15 AM
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#41 (permalink)
|   SS Featured AuthorTürk BilginiBugbear
Join Date: Apr 2006 Location: {in a leap of faith}
Posts: 31,791
Hogwarts RPG Name:
Sarani Glass
Graduated x12
| ♥ Mrs. Itachi Uchiha™ & MAJNOO! : Bleach & Kyo & Natsume ♥ [ Maxh!Jesh ]
*hugs her Jo* Go you!
I'm glad to know she's speaking against it, and I couldn't agree with her more on the subject.
Wish her all the best!  | |
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03-05-2007, 06:04 PM
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#42 (permalink)
| | Firecrab
Join Date: Dec 2005 Location: in my own little world...
Posts: 862
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 to the awsome powers of JK.....way to go
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05-04-2007, 12:22 AM
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#43 (permalink)
| | Gnome
Join Date: Aug 2005 Location: on the black pearl!
Posts: 281
Hogwarts RPG Name:
Seriana
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that's so sweet!
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