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Old 02-28-2007, 06:37 PM
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Post J.K. Rowling fights for MS patients

J.K. Rowling, patron of the MS Society Scotland, spoke out yesterday against the Scottish Medicines Consortium’s decision to ban use of the drug Tysabri to treat multiple sclerosis (MS), due to its high cost.

Quote:
I know from personal experience that MS can have a devastating effect on everyone who comes into contact with it. My mother suffered terribly with MS and it was so frustrating that there was little or nothing doctors could do to help her.

If a drug can help tackle MS - particularly the very aggressive type of relapsing MS we are talking about - it should not be ruled out because of cost alone.

Once again, decisions about treatment are being made by accountants rather than clinicians, and I hope MSPs will speak up on behalf of the thousands of families affected by MS across Scotland.
Tysabri, which costs £15,000 per year, is prescribed as a last resort for patients who have not had success with any other form of treatment.

According to Mark Hazelwood, director of the MS Society Scotland:

Quote:
People affected by MS in Scotland should have the same access to treatments as their counterparts in Ireland, Germany, the U.S. and elsewhere.

More that 10,000 people are now taking this drug worldwide, but we are barely out of the starting blocks.
Ironically, Scotland has the highest rate of MS worldwide, with one in 500 people afflicted with the disease. Nearly 1,000 of them could potentially benefit from Tysabri.
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Old 02-28-2007, 06:43 PM   #2 (permalink)
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Go Jo for speaking out first to post
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Old 02-28-2007, 06:53 PM   #3 (permalink)
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im rite behind ya!!!!

yay!!! second to post!
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Old 02-28-2007, 07:29 PM   #4 (permalink)
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Go Jo !
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Old 02-28-2007, 07:41 PM   #5 (permalink)
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Good For Jo. I'm glad she is letting her voice be heard. I hope that everything turns out okay.
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Old 02-28-2007, 07:42 PM   #6 (permalink)
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It's great to know that Jo's acting for a cause ^^ I wish her the best of luck with it!
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Old 02-28-2007, 07:51 PM   #7 (permalink)
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I couldn't agree more!!! Great of her to use her fame to help out such a great cause!! Best of luck with it!! This just further illustrates why JKR is sooo greaat!!
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Old 02-28-2007, 07:56 PM   #8 (permalink)
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Old 02-28-2007, 07:56 PM   #9 (permalink)
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I agree with Jo! Its great she is standing up for people and using her fame to help others Who cant ignore the great Rowling? I wish her good luck with her cause
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Old 02-28-2007, 07:59 PM   #10 (permalink)
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Thats great to hear she's sticking up for those with MS again. I wish her all the best.
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Old 02-28-2007, 08:05 PM   #11 (permalink)
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Go Jo!!!
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Old 02-28-2007, 08:09 PM   #12 (permalink)
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Old 02-28-2007, 08:17 PM   #13 (permalink)
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Way to stand up to it Jo!
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Old 02-28-2007, 08:30 PM   #14 (permalink)
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it better not be banned!! i need all the meds i can get!!
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Old 02-28-2007, 08:43 PM   #15 (permalink)
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its amazing that Jo's speaking out for stuff like this. It shouldnt be banned just becuase of its cost!
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Old 02-28-2007, 08:55 PM   #16 (permalink)
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Go Jo!!!
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Old 02-28-2007, 09:41 PM   #17 (permalink)
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I agree here. I feel very sorry for Jo, since her mother died with such pain left for her and the doctors.
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Old 02-28-2007, 09:49 PM   #18 (permalink)
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It's great the Jo cares so much. She's really an absolutely wonderful person!
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Old 02-28-2007, 10:02 PM   #19 (permalink)
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Thank you Jo!
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Old 02-28-2007, 10:06 PM   #20 (permalink)
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Way to go Jo!!!!
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Old 02-28-2007, 10:10 PM   #21 (permalink)
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Not only is she talented but really nice to....I love her
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Old 02-28-2007, 10:37 PM   #22 (permalink)
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Wow Jo!!! GO JO!!!
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Old 02-28-2007, 10:57 PM   #23 (permalink)

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wow go jo!
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Old 02-28-2007, 11:27 PM   #24 (permalink)
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Wow, go Jo! That's great.
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Old 02-28-2007, 11:43 PM   #25 (permalink)

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I agree with her, though. I mean... they're going to give up lives just so they can save money. It's stupid!


Go JK!
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